Mum died from early dementia - I had to find out if I will too
2 hours ago Share Save Ed James BBC Radio WM and Shehnaz Khan West Midlands Share Save
Liv Heeney Liv Heeney discovered she had a faulty gene which puts her at risk of early onset dementia
When Liv Heeney was 28, she discovered she had a faulty gene that would probably cause her to develop a rare form of dementia at a young age. Early onset frontotemporal dementia (FTD) has already affected 13 members of her family, including her mum Bernie, who died from the disease aged 54. Liv, from Birmingham, is living with the reality she will likely develop the condition in her 40s and die in her 50s - but she's using the knowledge to ensure any children she has are not born with the gene.
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